Thursday, November 25, 2021

A Day of Thanks

It’s Thanksgiving and I just want to wish you all a happy and healthy holiday. I haven’t written a blog as there’s not much to update you on… yet. The end of this month and December is stuffed with chemo, scans and appointments. Today, I am focused on gobbling up food and making new memories.

I am working and I am grateful for that. The co-workers, family and friends who have supported me via texts, gifts and messages. I am grateful for all of you. Every Facebook comment, card, delivered meal and “check-in” text are all things I cherish and am thankful for. Every… single… one. Every... single... day.


I am just grateful to be here today. Alive! God has granted me another Thanksgiving. I am not in the hospital. I am not puking into a toilet. I am not bedridden. I am just grateful. I’m looking forward to spending part of the day with my parents. Without them and their never-ending love and support I’d be nothing. They visit me daily. They drive me to appointments (my vision still stinks). They feed me and shop for me. They are unsung heroes on this journey. 


This journey is one you all make bearable. I wish you and your loved ones a Happy Thanksgiving! I’m sending love and light to those who are missing loved ones today. I know the holidays can be tough. Be grateful for the memories of those angels watching us today. They’re smiling down upon us and here in spirit.

Sunday, October 31, 2021

Day 31: "Dear MBC"

 October 31, 2021




Dear MBC,


It’s Halloween! That means my month of writing to you is over. It’s been a good day… but right now you have my stomach in knots and my head hurting. I’m making myself some “Love” tea. I haven’t had it in forever! Tea always makes everything better. Ok, I just took a sip and my teeth hurt. #Weird. 


For those of you who have been reading my diary… I hope it has given you a small glimpse into what living with metastatic breast cancer is like. Some days are good. Some days are bad. Some days are up-and-down. MBC teaches you to roll with the punches. To cut yourself some slack. To listen to your body even when you don’t want to. MBC teaches you to be grateful for the little things and celebrate even the smallest victories. It teaches you to embrace the sucky moments and cry it out… but to keep moving forward. Accept. Adapt. Appreciate.


I hope you’ve recognized some of yourselves in my posts. I hope they’ve brought you light in the darkness… even through the fog. I hope they’ve given you a different perspective from whatever bench, sofa or chair you’re sitting on. That you realize you have a choice in what you see in life. Do you choose to see the joy or do you just see the bad? Accept. Adapt. Appreciate… and keep going knowing that you matter. That your story matters. That you are still growing and learning.


I’ve learned “God gives his toughest battles to his strongest soldiers,” so the saying goes. Well give me my helmet, my bat and my Cancer Crusher jersey. I’m ready for battle. I may get wounded and sidelined but this soldier will always dust herself off and march on.


Till tomorrow MBC.



Sincerely,

Jessica


P.S. The “Love” tea is helping a little. So take that! 

Saturday, October 30, 2021

Day 30: "Dear MBC"

 October 30, 2021



Dear MBC,



It’s been a few days. I went to my parents for some self-care appointments. I worked… minus one day where the Wi-Fi decided not to work. I tried though! It’s always nice to escape the city and venture to the burbs. I saw some cute little ghosts and goblins trick-or-treating today! 


I was feeling pretty spooktacular Wednesday and Thursday. I was just really fatigued. Friday was not a treat. You played a trick on me MBC! I felt fine all morning. Around 11:30 I was in pain. You did this to me once before. I feel fine and then move and am in this crazy constant pain. It’s like if you put a thick rubber band around my chest and upper back and then take a knife and stab me… kinda like a voodoo doll. I mean it’s not fun. The pain makes breathing hard. It just hurts. I swear it’s skeletal pain but I’m no doctor. Maybe I should be a skeleton for Halloween! LOL Anyway, I took two extra strength Tylenol and after a few hours I felt better. Thank goodness!


I feel much better today. It’s now Saturday night. I’m back at my place. I tried eating three different meals for dinner. They all tasted awful. I had an Ensure. It was ghoul-licious. Ghostbusters “Walk The Moon” is playing on Pandora. I watched some reality tv. All is good.


MBC... you’re kinda like a ghost. You’re always hovering about. Sometimes you are friendly and don’t bug me too much. Sometimes you're like “BOO!” and sneak some crazy symptom on me… like yesterday! I try to be like,“I ain’t afraid a no ghost,” but sometimes you do scare me. Don’t worry, I just do the monster mash on you and squash the symptom you throw at me the best I can. 


Have a wicked good night! 



Sincerely,

Jessica

Tuesday, October 26, 2021

Day 26: "Dear MBC"

 October 26, 2021



Dear MBC,


It’s Tuesday but it feels like Thursday. I’m not sure why. I’m a bit fatigued MBC. I exude a lot of energy but I’m really just tired. I’m still not sleeping too well at night. I’m still waking up in hot sweats. I worked this morning and treated myself to a nutella latte AFTER I had my own coffee at home. I also picked up some medication and had an appointment. 


Meantime, all the food I’ve tried to eat tastes not great but not awful. The butternut squash soup I loved the other day was nastified today. Same goes with my hummus and veggies and Eggos. The egg salad I loved over the weekend… not so good today. Nothing tastes normal.


What was normal today? For a brief moment I felt like my old self. I felt like my pre-cancer self. It was a fleeting moment. I had my nutella latte in my hand was walking to get my prescription. I felt good! I felt energized. I felt normal. It was really weird! Then it was gone. It’s a moment I’m grateful for today. I keep trying to figure out what sparked that feeling. I just don’t know. Maybe it was because for the first time in a year I wasn’t wearing sneakers. I had put on my knee high black boots! I was excited they fit because I’ve lost so much weight. I didn’t know if my feet had shrunk too! LOL The boots fit though and maybe that’s what made me feel normal. 


Speaking of my weight… don’t worry I am eating. I am currently munching on the veggies and hummus that taste weird. I also have some cheese handy. Oh wait… it’s been 10 minutes and I’m having some BarkThins. See! I’m eating.


I’m finding if I sit with my legs crossed my joints are really sore. That’s just a random thing I’ve noticed today. 


That’s all I have for now. You’ve been pretty decent to me MBC so far this week. I can’t really complain. Till tomorrow.



Sincerely,

Jessica

Sunday, October 24, 2021

Day 24: "Dear MBC"

 October 24, 2021



Dear MBC,


We always have the choice—to complain or to count our blessings. A fellow thriver once said that. Yesterday, as I Raced for the Cure I counted my blessings and my steps. Each step represented a step forward. A step towards finding a cure. A step towards more research. A step into the future. 


I could have chosen to complain about the map I created for my walk. It was a virtual walk. It took me onto Michigan Avenue and through the hospital campus. I didn’t complain. Instead, with each step, I chose to count my blessings. Let me take those of you reading this with me. So many of you cheered me on!


Lace up your sneakers. We're going for a walk. 


The walk.


I pass a McDonald’s and thank Ronald for the milkshakes he served me when they were all that I could eat. Vanilla. I turn left and continue forward. I pass hospital staff probably returning to their cars after their shifts. I smile at them. They could be coming from Prentice Women’s Hospital. I purposely stop there and take a picture. It’s where my oncology team is and where I get my chemo. I silently thank my team for always walking besides me on this journey. Sometimes, they’re one step ahead. They never walk behind me. I continue on. As I walk towards Michigan Avenue I pause. I’m listening to music. I forgot to tell y’all that! I’ve listened to songs such as “Fight Song,” “You’ll Be Back,” “Go West,” and “Mi Gente.” My steps are speedy. I slow down. I turn left towards the fancy Reserve Starbucks that always baffles me with its’ long line. I don’t want to wait in the cold so I cross back over Michigan Avenue to stop at a regular Starbucks. Also, my neuropathy is kicking in and I’m a bit chilly. I figure the impromptu pit stop will help. In hindsight… that Starbucks is right next to the building where I had whole brain radiation and gamma knife surgery. I leave Starbucks with my hot chocolate. Fitting, as a Christmas song pops up on my playlist. It’s “Jingle Bell Rock” by The Brian Setzer Orchestra. As I walk down the block… drinking my cocoa… I think about when I saw the band perform in Palm Springs. I had produced the 6pm news that day. I remembered my drive to the concert and how much fun I had that warm desert night. As I reminisce a burst of cold wind hits my face and jerks me out of the warm past and into the chilly present. I’m standing in front of the Emergency Room. There are pillars outside the ER. Each pillar has a pink ribbon on it. I pause and snap a picture. I think, “Why are there just pink ribbons on these pillars?” You are missing MBC. The metastatic breast cancer ribbon is not represented. “Are we forgotten,” I question? I think of the tri-colored ribbon I have on my shirt and look at the emergency room sign. MBC… you brought me here multiple times. Each time I was a shell of a person. You had me feeling like crap! One time I had to be wheeled in. I could barely walk… but the wheelchair moved me forward into the ER and into the hospital. Always forward. Today, I stand in front of those doors grateful for that care and grateful that I survived. Not everyone leaves the hospital. I look up to the sky at the angels I can’t see but know are there. I take some sips of my cocoa and continue forward. I want to walk more but my body is starting to tell me it’s time to go home. My neuropathy is getting worse and now my lower back hurts. I have to listen to you MBC. I know if I don’t I’ll regret it. So… with each step to my apartment I count my blessings. My parents, my friends, my medical team, my ability to be mobile, my work…. my life. Those are all blessings. It’s a blessing that I’m able to do the virtual Walk for the Cure. As I enter my building and ride the elevator up I give myself a silent round of applause. I step off the elevator and into my apartment… moving forward. Always forward. #KeepGoing


Today, I’m resting. I’m sleeping. I’m stretching. Just because I’m resting doesn’t mean I’ve stop moving forward. Tomorrow I’ll take more strides. Until then… good night MBC.



Sincerely,

Jessica

Friday, October 22, 2021

Day 22: "Dear MBC"

 October 22, 2021



Dear MBC,


It’s Friyay!!!!! Thank goodness. You just make me sooooo fatigued MBC. I’m not sleeping well and when I do sleep I don’t feel rested after. I woke up not feeling great but pushed myself to work anyway. Acupuncture was good but my head just hurts, my eyes just blurry/tired and my body fatigued. I have the virtual Walk for the Cure tomorrow and while opening ceremonies are at 9am I plan to start walking earlier. My goal … a one mile walk. I was going to walk by the lakefront but it’s supposed to be a bit chilly tomorrow and the wind may be bad. I’m concocting a walk map in my mind. I think I may do a rectangle that includes the Northwestern Hospital campus and maybe the Riverwalk. We will see how I’m feeling. I don’t have much else to say today except I am just fatigued and can’t wait to snuggle under my covers. 


Till tomorrow MBC.



Sincerely,

Jessica

Thursday, October 21, 2021

Day 21: "Dear MBC"

October 21, 2021



Dear MBC,


I didn’t have much to say yesterday so I gave myself the night off. I didn’t feel guilty about it. In the past I might have. I do what I'm able and that’s fine by me. Fatigue and constipation is really starting to hit me. You haven’t knocked me out. You just have me moving like a blurry-eyed sloth. I’ve been working. I’ve been eating a little. I’ve been moving around the apartment. I’m still standing MBC! Honestly though… the fatigue is just annoying. My eyes are half shut as I type this. I have NewsNation on but reading the banners and scroll is difficult. I used my eye drops but they’re not helping too much. These are Rx drops too! They cost $100. That’s another thing MBC… you are expensive. I honestly don’t know how those who can’t afford health insurance, or don’t have access to it, handle the added financial stress. It can be financially stressful with insurance. 


You are relentless MBC. Fellow MBC thrivers I follow on social media are struggling as a few learned their scans show progression… their treatment failing them. Some are switching to a new chemo and others are re-starting. While we all want to find new treatments to prolong our lives and improve our quality of life… ultimately it’s a cure to crush you we all pray and hope for. From extra weight to lost lb’s… from foul tasting food…to migraines. From fatigue to bone pain… to vomiting and nausea… you try to take over our bodies. Sometimes you instill fear in us but we will always continue to fight. 


Till tomorrow MBC.



Sincerely,

Jessica